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Information & Privacy Statement

Purpose of Emerge Australia’s Services Directory

Emerge Australia is compiling a publicly accessible ME/CFS and long COVID Aware Health Practitioner Directory to help patients, carers, and clinicians more easily identify healthcare practitioners who are knowledgeable in the management of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and/or long COVID.

We will also be listing community services that patients and practitioners may find useful, even if those services do not have specific training in ME/CFS or long COVID.

The directory has been developed in direct response to consistent feedback from our community, who often face significant difficulty locating healthcare practitioners with experience or interest in these conditions. The aim is to promote better access to informed and supportive care for those living with ME/CFS and/or long COVID.

View the Directory home page here.

What does an “ME/CFS or long COVID aware practitioner” mean?

If you chose to be listed on the directory, it does not mean that you are necessarily an expert in ME/CFS or long COVID (although of course you may be). 

We know not all healthcare practitioners will be experts in ME/CFS and/or long COVID or wish to become experts. An “ME/CFS-aware” practitioner is one who may have attended an Emerge Australia training event or who has spent some time updating their knowledge. They will be supportive and open to receiving information about ME/CFS and working alongside patients. 

On our directory page, we have a comprehensive FAQ section.

Request for Participation

You are being invited to be listed in the Directory as a healthcare practitioner if you have demonstrated interest, experience, or clinical knowledge in managing ME/CFS and/or long COVID.

By agreeing to be included, you are helping to improve care pathways and provide vital support to individuals who often experience barriers to adequate medical attention.

Who do we list:

We currently list practitioners who are either registered with AHPRA (Australian Health Practitioner Regulation Agency), ESSA (Exercise Sports Science Australia) or AASW (Australian Association of Social Workers) or are an Accredited Practicing Dietician through Dieticians Australia.

We don’t list practitioners with restrictions on their practice. 

Information to Be Displayed

The following publicly shareable information will be displayed in the directory (unless specified by you):

  • * Full Name
    * Medical Specialty (e.g., General Practice)
    * Practice Name and Address (including suburb, state)
    * Practice Contact Information (e.g., phone number, email, website)
    * Areas of Interest or Experience (e.g., ME/CFS, long COVID, post-viral syndromes)

Please note: We will not collect or publish sensitive personal information such as AHPRA registration numbers, Medicare provider numbers, or any other identifiers deemed sensitive under Australian privacy law. You may also request particular information to be withheld that we would normally publish.

Audience

This directory is intended for use by:

  • * Patients seeking informed medical care
    * Carers supporting individuals with ME/CFS or long COVID
    * Clinicians and Allied Health Professionals looking to refer or collaborate.

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Your Rights

You may update or correct your information at any time.

You may request removal from the directory at any time, with no explanation required.

Emerge Australia will not use your information beyond the scope of this directory without your express permission.

How to be listed

We want to make listing yourself as easy as possible. Please fill out this form and we will add you to database.

Once you have been added to the directory, you will receive an email. You can then claim your listing and update any details visible to the public. Please make sure this includes how you help people with ME/CFS and/or long COVID.

Privacy and Data Use

Emerge Australia is committed to protecting your privacy and complying with the Privacy Act 1988 (Cth) and the Australian Privacy Principles.

Only publicly available or consensually provided professional information will be collected and published.

No sensitive personal information or health data will be requested, stored, or shared.

The directory will be securely maintained and updated regularly.

Contact Us

Thank you for your contribution to improving care and visibility for people living with ME/CFS and long COVID.